A Spennymoor pub is raising funds for Angelman UK, a charity which supports families of children and adults diagnosed with Angelman syndrome.
Sadly, the proprietors of the Frog and Ferret Pub in Coulson Street have recently found out that one of their family has this condition and have started a fundraising campaign to raise money for the charity that supports these children and adults. They have named it ‘Archie’s Appeal’ after the child in question, but it must be stressed that none of the money raised will go directly to Archie’s family. It all goes to Angelman UK.
So far, there have been fundraising activities such as a charity quiz night and a race night, as well as tombolas, raffles and football cards. There is also a collection box on the bar for donations.
At the time of writing, just over £1800 has been raised and there are two big events planned for the summer. On 20th July there will be a music day, where several bands have agreed to play throughout the day for free. The entry charge of £3 per person will be donated to the charity.
On 3rd August there will be a family fun day with food stalls, face painting, a bouncy castle and more. The owners of these businesses have all agreed to donate a percentage of their profits to Angelman UK. Both of these events will be held at the Frog and Ferret.
Public support is very important to these events and will be greatly appreciated by all concerned. In the meantime there will be more raffles etc. and any donations of prizes from local businesses or the general public are welcome.
Angelman syndrome is a rare genetic condition that affects the nervous system and causes severe physical and learning disabilities. A person with Angelman syndrome will have a near-normal life expectancy, but they will need support throughout their life.
People with Angelman syndrome usually have good general health and are often able to improve their communication and acquire new skills and while there’s currently no cure for Angelman syndrome, research into treatments is being done in other countries. There are also clinical trials looking at treatment for some of the symptoms associated with Angelman syndrome, such as seizures.
A child with Angelman syndrome will begin to show signs of delayed development at around 6 to 12 months of age, such as being unable to sit unsupported or make babbling noises. Most people with the syndrome will have learning disability and limited speech throughout their life.
In adults, some mobility may be lost and joints may stiffen.
For more information call: 0191 3897246 or contact The Frog and Ferret Spennymoor Facebook page.
